August 2021

TP73 Gene Mutations May Be Risk Factor for Sporadic ALS

Rare mutations in the TP73 gene, which is involved in the regulation of a cell’s life cycle, may put a person at greater risk of amyotrophic lateral sclerosis (ALS), according to a genetic analysis of nearly 2,900 sporadic ALS patients.   Such mutations were found to affect the maturation and survival of motor neurons in […]

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Frequent, Intense Exercise is a Risk Factor for ALS – – But is it?

Get ready for a flurry of viral articles and posts on social media bashing exercise and ALS. Although we’ve had over 10 years of published research showing the benefits of exercise once you’ve been diagnosed with ALS. New research has been published that delves into the controversy surrounding theories that exercise (or sports) increases the

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Risk of Diseases Like ALS Almost 4 Times Higher in Professional Soccer

Men who played professional soccer were nearly four times more likely to develop a neurodegenerative disorder, including a motor neuron disease such as amyotrophic lateral sclerosis (ALS), than men of similar age in the general population, a long-term analysis found.   Risk was greatest in players with longer careers and among those who played in

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Intervjui sa porodicama koje su učestvovale u filmu Nevidljivi heroji Srbije

Autorke filma Nevidljivi heroji Srbije Dr Zorica Stević, profesorka Medicinskog fakulteta, rukovodilac Centra za polineuropatije na Klinici za neurologiju Kliničkog centra Srbije i njena ćerka Irina Tomić snimile su film o njima. Kako se bore sa bolešću koja je zadesila njihove najmilije, govorile su supruga Radoslava Međedovića, sestra Žarka Đurića i ćerka Vladana Trivića, koji

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Gentle movements to improve body-mind awareness

Not all exercise needs to be huff-and-puff or throw-and-go. Sometimes moving slowly while paying attention to the details of each movement is beneficial too. Especially for increasing our body-mind awareness. Which for those of us living with ALS, is extremely important.   Some days my body just feels disconnected; my arms and legs receiving garbled

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Pre-fALS

For more than a decade, investigators at the University of Miami Miller School of Medicine have been studying the earliest signs of amyotrophic lateral sclerosis (ALS). Now, armed with biomarkers and findings from their Pre-Symptomatic Familial ALS (Pre-fALS) study, these researchers are collaborating with Biogen to design a clinical trial that aims to evaluate whether

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