Aktuelno

Poštovani prijatelji, Čestitamo Vama i Vašim porodicama Novu 2021.godinu! Želimo Vam da Božić i Novu godinu provedete u krugu svojih porodica okruženi ljubavlju srećom i radošću.

Udruženje za bolesti motoneurona Srbije je od MK Group dobilo i donaciju u oktobru 2020. Godine, od 10 000 evra, koju je iskoristila za nabavku dve nove NIV mašine Vivo 3 i Vivo 55 koje je Udruženje doniralo Kliničkom Centru Srbije za potrebe ALS pacijenata koji su ugroženi što se tiče disanja i kojima je

In 2010, a few short months after my ALS diagnosis, I found myself having to rely full time on a rollator. I’ll be the first to admit I wasn’t happy at all. But now, nine years later, it’s become my ever-present silent buddy, and I can’t imagine my life without it! Are you struggling to

A first patient has been dosed in the Phase 2 trial investigating pegcetacoplan (APL-2), Apellis Pharmaceuticals‘ candidate therapy for amyotrophic lateral sclerosis (ALS), the company and the Swedish Orphan Biovitrum (Sobi) announced. The potentially pivotal trial, called MERIDIAN (NCT04579666), is currently enrolling patients at the Austin Neuromuscular Center. It aims to recruit 228 adults with sporadic ALS and symptom onset within the last 18 months at the Texas site,

BREN-02, a lab-made form of the human protein engrailed 1 (EN1), has been designated an orphan drug by the U.S. Food and Drug Administration (FDA) as a potential treatment of amyotrophic lateral sclerosis (ALS), its developer, BrainEver, announced in a press release. Orphan drug status is granted to stimulate the development of therapies aiming to prevent, diagnose, or treat disorders affecting fewer than 200,000 people in

“I am a rock, I am an island, And a rock feels no pain.” In 2020, there have been none of Paul Simon’s “rocks” to be found in the social circles that I inhabit. Everyone that I know has endured suffering of one kind or another. Many folks’ pain is derived from multiple sources. Tomorrow is

Važne napomene : Poštovani pacijenti sa bolešću motoneurona i članovi porodica obolelih Borba sa virusom COVID 19 još uvek traje i obolelii od amiotrofične lateralne skleroze kao i ostalih oblika bolesti motoneurona još uvek su u grupi izuzetno rizičnih bolesnika . Potrebno je da se i dalje pridržavate predloženih mera zaštite od infekcije ovim virusom: