Pozivnica za promociju filma Nevidljivi heroji Srbije
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June 2021
The Mystery Behind Keeping the Home Fires Burning
“You shoot me glances and they’re so hard to read, I misconstrue what you mean. … Are you just playing, making passes? Well, my heart could use some glasses. … Do I read you correctly, I need you directly, Help me with this part, Do I love you? Do I hate you? I got a
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International Alliance of ALS/MND Associations
PURPOSE: The Alliance is a global network of ALS/MND associations informed by PALS/CALS, that builds capability for its members and connects to external stakeholders. VISION: A World Free of ALS/MND VALUE PROPOSITION: We help members thrive by adding value to existing and future associations through curation and creation of information and by acting as
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Biogen Agrees to Tofersen Access in July for Rapidly Advancing ALS
People with very rapidly progressing familial amyotrophic lateral sclerosis (ALS) caused by mutations in the SOD1 gene may gain early access to Biogen’s experimental therapy tofersen by mid-July, the company announced. This marks the first part of Biogen’s planned access program for tofersen, and will begin after patients initially assigned to a placebo in VALOR, the Phase 3 portion of a
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#AANAM – Progression May Be Evident in About 1.5 Years of Radicava Start
Editor’s note: The ALS News Today team is providing in-depth coverage of the 2021 Virtual AAN Annual Meeting, April 17–22. Go here to read the latest stories from the conference. Amyotrophic lateral sclerosis (ALS) patients require walking aids, ventilation support, and/or speech generation devices about 1.5 years after starting treatment with Radicava (edaravone), according to data from U.S. insurance health claims.
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Come Smell the Bacon
“Everybody’s talkin’ at me, Can’t hear a word they’re sayin’, Only the echoes of my mind.” – Fred Neil ALS has rendered me a minimalist creature of habit. My weekday routine includes the intersection of paranoid caution, practiced routine, and hunger — known to most as lunch. During this necessary refueling stage, I often take
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1.MDA Golf Events to Support Neuromuscular Research, Patient Care
Registration is now open for fundraising events at four championship golf courses, whose fees will be used to fund research, care, and advocacy for neuromuscular disorders such as amyotrophic lateral sclerosis (ALS) and muscular dystrophy. According to the Muscular Dystrophy Association (MDA), which is promoting the events, money raised will help to provide equal access
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