gocinirecepti

International Alliance of ALS/MND Associations

PURPOSE: The Alliance is a global network of ALS/MND associations informed by PALS/CALS, that builds capability for its members and connects to external stakeholders.   VISION: A World Free of ALS/MND   VALUE PROPOSITION: We help members thrive by adding value to existing and future associations through curation and creation of information and by acting as

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Biogen Agrees to Tofersen Access in July for Rapidly Advancing ALS

People with very rapidly progressing familial amyotrophic lateral sclerosis (ALS) caused by mutations in the SOD1 gene may gain early access to Biogen’s experimental therapy tofersen by mid-July, the company announced.   This marks the first part of Biogen’s planned access program for tofersen, and will begin after patients initially assigned to a placebo in VALOR, the Phase 3 portion of a

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#AANAM – Progression May Be Evident in About 1.5 Years of Radicava Start

Editor’s note: The ALS News Today team is providing in-depth coverage of the 2021 Virtual AAN Annual Meeting, April 17–22. Go here to read the latest stories from the conference.   Amyotrophic lateral sclerosis (ALS) patients require walking aids, ventilation support, and/or speech generation devices about 1.5 years after starting treatment with Radicava (edaravone), according to data from U.S. insurance health claims.  

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1.MDA Golf Events to Support Neuromuscular Research, Patient Care

Registration is now open for fundraising events at four championship golf courses, whose fees will be used to fund research, care, and advocacy for neuromuscular disorders such as amyotrophic lateral sclerosis (ALS) and muscular dystrophy. According to the Muscular Dystrophy Association (MDA), which is promoting the events, money raised will help to provide equal access

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#MDA2021 – WVE-004 Treats Causes of ALS Due to C9orf72 Mutations in Early Study

Editor’s note: The ALS News Today team is providing in-depth coverage of the 2021 MDA Virtual Clinical and Scientific Conference, March 15–18. Go here to read the latest stories from the conference.   WVE-004, an investigational treatment for people with amyotrophic lateral sclerosis (ALS) and frontotemporal dementia (FTD) who carry C9orf72 gene mutations, lowered the

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PharmaTher Plans to Develop Ketamine as Potential ALS Treatment

Under an agreement with the University of Kansas, PharmaTher has gained exclusive worldwide rights to develop and possibly commercialize ketamine as a therapy for amyotrophic lateral sclerosis (ALS). “We are pleased to have added the [ALS] program to our already impressive development pipeline that focuses on novel uses, formulations and delivery of ketamine in the

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Tube Feeding

Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disorder associated with the death of motor neurons. These are nerve cells that control the voluntary muscles, which are essential for movement.   As the condition progresses, the muscles weaken and waste away, resulting in a loss of muscle control. Although ALS can progress differently in each

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MND study provides exciting new focus for potential drug treatments

January 2021: Motor neurone disease treatments that boost energy in nerve cells could be developed thanks to new research. Researchers at the Euan MacDonald Centre for MND Research have recently published the findings of a research study that has provided a new focus for potential drug treatments for MND.   The research team created a

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